‘I don’t why am still not well’ Elsie Odhiambo cries out her endometriosis experience

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The month of March is the month of Endometriosis awareness. In creating awareness, Kenya endo warriors had launched 3 days of yellow where they were to dress in yellow as they continued fighting endometriosis. Joining the campaign, endo warriors; Njambi Koikai, Ciru Muriuki ans Elsie Odhiambo have been sharing their endo jurney.

The Endometriosis Foundation Kenya in collaboration with the Aga Khan University Hospital-Parklands, Nairobi will be joining global efforts in marking World Endometriosis Day. The foundation which was founded by Elsie Wandera Odhiambo and launched in 2014, aims at creating awareness about endometriosis, that has ravaged many lives.

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Elsie was diagnosed with endometriosis at the age of 26 after enduring severe periods for 13 years. She explained her experience; “I don’t know why i’m still not well to date after 3 surgeries and hormone therapy…i don’t want to feel like i’m making excuses for not being able to show up at the office or social gatherings…!” #endometriosis is complex and requires a multi-disciplinary approach for a sustainable solution.

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I’ve had 3 surgeries to date since i was first diagnosed with #endometriosis i remember i was 26yrs old and it took almost 9 years to discover what was ailing me and give it a name. It always felt, and still feels like a punishment going through the hormone therapy, the pain medication every month. The 1st 8 months of my marriage has not been easy but i thank god for a supportive husband.

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I think the worst is having to explain my condition to everyone to understand or even believe me. In 2014, i chose to #endthesilence and ensure my story was heard and represent the kenyan women who suffer in silence. The efk was born through my pain…i say it’s all worth it because one day someone will find a cure and in the process i know many women feel that they are not alone as they read the other stories from the women in our support group.”

Endometriosis has affected millions of women across the globe, with over 176 million suffering in silence.

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